March 1st 2023
1st Annual Virtual Luna 5k run/walk will promote awareness for children born with Arthrogryposis Multiplex Congenita(AMC)
AMC involves a variety of non-progressive conditions that are characterized by multiple joint contractures (stiffness) and involves muscle weakness found throughout the body at birth.
There is no absolute cure for this condition; however, quality of life can be greatly improved depending on the severity of the syndrome and each individual patient’s needs. It’s important that the care-givers be very involved and the treatment stem from a multi-disciplinary approach:
- Physical and occupational therapy which may include stretching, casting, strengthening, mobility training and addressing fine motor skills to improve range of motion and foster independence.
- Psychosocial and emotional issues need to be addressed early on to build a child’s self-esteem and teach them how to lead a full, productive life.
- There are a variety of orthopedic surgery options that may be needed for a child with arthrogryposis. Some are simple, such as an achilles tendon release, some are moderate, including elbow and knee surgeries and some are very involved, including limb lengthening and spinal surgery. Each patient will have an individualized orthopedic exam (which may include x-rays), and any surgical options will be discussed with care-givers so that a well-informed decision can be made regarding any proposed surgery.
We will come together, as runners and walkers to bring awareness on MARCH 1st 2023