I write this post with much sadness. 😢 Our family has decided to cancel Racing For Rett for this October 2020. Even though this was a very difficult decision, we believe it is the correct decision to make for the safety of our children & all who attend. 

We will continue to pray for our community and pray that next year we will be able to see you all in person at the event once again!! ❤️


We would like to invite you to be a part of Racing for Rett 5K 2021.  This event is a 5K Run/Walk & Silent Auction to support a cause we are all extremely passionate about!


Racing For Rett is a non profit 501(c)(3) organization.  The organization was founded by a local Kansas City family.  Racing For Rett is an 5K family run/walk and silent auction that raises money and awareness for Rett Syndrome.  All funds will be distributed for research of Rett Syndrome.  We are very passionate about raising funds for research to find a cure for Rett Syndrome and raising awareness for this debilitating disorder.


What is Rett Syndrome?

  • Serious lifelong neurological disorder caused by random mutations in a gene (MECP2)
  • Babies develop "normal" but begin to lose acquired skills between the ages of 1-3 years old
  • Leading genetic cause of severe impairment - most cannot speak, walk or use their hands
  • Many suffer from seizures, breathing problems, anxiety, feeding tubes, GI and orthopedic issues
  • As prevalent as Cystic Fibrosis, ALS and Huntington's
  • Rett Syndrome is a potentially REVERSIBLE disorder! 


Our family is proud to host Racing for Rett on October 9, 2021 at the Harrisonville City Park in Harrisonville, MO. 

The 5K Run/Walk and silent auction will begin at 9 am on Saturday, October 9, 2021.  Packet Pick-Up will occur Friday, October 8. 
We will present awards for 1st, 2nd and 3rd place in the Mens/Womens/12&under categories. 
The silent auction will begin prior to the race and the winners will be announced shortly after the presentation of awards.    



Subscribe to track & get notified of any updates to this activity (each activity requires a separate subscription/submission).